In order to spread awareness about Factor V Leiden - I'm currently asking girls from the yahoo group and my myspace group to send in photos of themselves while pregnant, with their babies, etc...
A few girls in the groups have asked if they can send pictures of the "not-so-happy" stuff. I have received so many stories and pictures of babies that were stillborn or died due to complicatiosn related to FVL.
It's so hard to look at these pictures. I can't help but break down into tears after reading their stories, feeling their grief. But, I guess that's the reason why I have to do this. So people "get it" -Realize what we fear is real.
We were beyond lucky with Sadie. So much so that I feel a wierd, awkward guilt about it. I hope that this project is viewed by not only the people who HAVE this genetic defect - but the doctors, nurses and families of those afflicted by it. People need to know that more research is needed to treat pregnant women with FVL. Maybe, someday, no babies will be lost.